Beauty Personified

Hey everyone,

How are you all? I hope that you are all doing very well and enjoying the new week ahead.

I received a beautiful poem written from a fellow Incontinence (Encopresis) survivor that I have been corresponding with for several years. Let me know what you think about it. Here it is:

BEAUTY PERSONIFIED

Looking around in wide and breadth

I went in search for a place where beauty had no dearth;

Found myself on a museum called ‘earth’

Below whose bower laid beauty well covered

 

I noticed the beautiful ocean, ‘so blue’!

But the beauty of blue was not so true!

The sky never did give us a clue….

But without the brocade over it, never the ocean had the ‘true blue ’

 

Came after the cozy night, appeared there the golden moon!!

Shining bright, but I don’t fall for it that soon

Wondering at the moon I discovered, she is filled with scars,

She was just trying to brazen staying that far

 

My search took me around the globe

Tired I was full of grief, singing in my lament;

I closed my eyes, after which mother earth opened her latch,

My questions all answered, I found a beauty for which had not match

 

I was scandalized but finally had a reason to smile

I felt like I just came out of exile!

This search left me satisfied

Oh! Mother Nature you are a beauty personified!

Encopresis survivor on tour – thoughts?

It has been suggested that I go on tour and share my experiences with others, publically. I didn’t realise how much Encopresis affects so many lives (both directly and indirectly) until I began my journey and this blog. For those that aren’t aware, I have come into contact with families (parents, survivors and battlers) from all over the world including Australia, United States of America, New Zealand, the UK, India and many more (feel free to share where you’re from). If I travelled around (perhaps as a part of my book launch), tell me…who would be interested in this?

Understandably there are many (and I do mean many) of families that are embarrassed about Encopresis or don’t want anyone to know what’s happening in your personal lives. As a Encopresis survivor I too understand how much it means the world to communicate, meet and connect with others that truly know what Encopresis is like. You aren’t alone if you’re afraid of how society handles it and yet dream of not being alone. A social get-together or a big event, school chats, connecting with professionals and Ellen DeGeneres. “Be the person you wish to see” is what I’m talking about here. When I had Encopresis I wished with all my heart to find someone else that admits to doing what I did…and it’s a rarity to find someone willing to share their experiences publically. If going on tour (or book launch) can be of some help to you and your life, please let me know, whether you post your thoughts here on e-mail: naturegirl015admin@themagicwithinus.com

You can count on me. I’m willing to chat to whomever I can to help. To turn Encopresis from a curse to a blessing isn’t easy, and I’m here to help you along the way. What are you thoughts on this? Would you go to one if you knew? Has anyone else done this before (specifically a survivor)?

Have an amazing weekend ahead everyone and thank you for reading. Take care,

Dimity

“With an open mind, and an open heart…anything is possible”

“It’s a power struggle” (- quote from Dr Phil)

Today (here) I have just watched something gut wrenching on the Dr Phil show. In an episode called “Biggest Mistakes you don’t know you’re making” (original broadcast date 11/24/09), there was a family whom have a son with Encopresis. Ironically I get a season in Australia that’s 3 years old, but I’m lucky I saw this one.

The boy (at time of broadcast) is pre-school age (3 years old I think) poops in his pants. Dr Phil commented that it’s a “power struggle” with the boy winning, and that comment has really upset me. If you have been reading my blog so far (thank you if you have) then you’ll know by now that I am an Encopresis survivor. Something that Dr Phil never mentioned in this particular episode is that their son (the parents on the show) has this medical condition. Dr Phil admits he doesn’t know much about it (even though he has had a previous family on the show with Encopresis, and mentioned it, in 2007). Dr Phil never had enco, nor Robin and neither has his own sons had it. The more I hear stories like this the more inspired and dedicated I am to complete my manuscript and get it published.

I wanted to so much to hug the boy and tell him he’s ok. Ironically Dr Phil hasn’t interviewed in the episode mentioned any survivors (such as myself) for opinions/thoughts/advice nor any “experts”. I can’t let these children suffer because of the myths and misconceptions. I’m understanding how hard it is for the parents in this situation, but I feel it more to how the children/teens/adults feel whom have (or have had) this condition. I have just measured my blood pressure and pulse, both are high (pulse measured at 75). I’ve also been crying my heart out.

If Dr Phil genuinely thinks this is a “power struggle” does that mean that what I have been through (punishing, yelled in public, no friends, no social life, bullied/stabbed/work stolen/things thrown at me, etc), is that meant to be intentional?? If the medical aspect has been looked at (for example chronic constipation or spasdic colon) then perhaps there may be something else involved (especially after talking to some of the parents on Facebook). However NOT every Encopresis child has a power struggle and Dr Phil didn’t acknowledge that. Something that is correct that Dr Phil says in the story is this:

“You’ve got to make sure that he knows that you love him unconditionally, so don’t withhold love and support.”

 Definitely keep this in mind and heart, my dear readers. Let me know what you think.

Here is the link to the website with the story: http://drphil.com/slideshows/slideshow/5439/?id=5439&showID=1360

For those interested here is the  link to the only other previous story on the Dr Phil show about Encopresis (I haven’t seen this episode myself. Dr Phil does seem more forgiving in this story and the comments from the public aren’t. However what he said in this link, he didn’t say to the story mentioned above that this post focuses on):

http://drphil.com/slideshows/slideshow/3908/?id=3908&slide=0&showID=916&preview=&versionID

I have to help and I’m here to help. I’m willing to do anything and everything I have to for these families. My book is written from a survivor…an Encopresis survivor. xx

Happy Australia Day (and Happy Birthday Ellen Degeneres)

English: The Ellen DeGeneres Show logo
Happy Birthday Ellen

Today is Australia Day, a public holiday to mark the day that Australia was colonised by the Brittish Settlers (and convicts). Early this morning (near midnight) we found a baby King Brown snake inside the house. My cat, Nyssa (whom also has her birthday on this day) found the snake and brought it to my attention. Fortunately the snake has been taken care of, no other snakes have been found and everyone is safe.

I wish to say a huge Happy Birthday to the wonderful Ellen Degeneres. I hope she has a wonderfully joyous and fun show and birthday, I know I would if I was there. The whole of Australia celebrates this day in their own unique way from watching fireworks, day/night out with family & friends (and you could say that we’re celebrating Ellen’s birthday too). Good timing to have a birthday, announce coming to Australia and Australia have a pubic holiday and fun on the same day.

However you choose to celebrate this day I wish you all the fun and happiness. Happy Australia Day and Happy Birthday Ellen!!

Why do some people have Encopresis and others do not?

Hello to all my readers out there. Did you have a wonderful start to the New Year ahead? I thought I would start my blog off this year with a recurring thought I had about my encopresis journey.

Here is my question to you: If we’re built the same (2 arms, 2 legs, 1 torso, etc..I’m talking generally), how come some people have encopresis and others do not?

What I have been wondering (and still do) is there are people like me that has suffered from Encopresis with the soiling underwear, constipation, enlarged colon, etc; and the other majority of people that have similiar experiences (constipation, the occasional use of a laxative to name a few) do not soil or have enco. Does that make sense in how I worded it?

I understand doctors advising to clear out the system and try and make the faecal matter soft enough to be able to be excreted without pain (and other recommendations), however as an encopresis survivor I feel (and this is my personal opinion) that we are treating the systems of enco, not the cause. When you have encopresis the stool is generally hard, so how come no matter how much water we drink we still have hard and painful stools? Other people can drink water and have normal soft stools, and yet when you suffer from enco this doesn’t work. Are doctors and specialists researching this particular scenario? (if they are I haven’t found any reseaech yet).

I have found a doctor in Australia that specialises in the “button” sugery for children with enco (to be honest I’m not sure myself how it works, and am grateful that I didn’t go through that surgery), and has had success with his patients. I wonder that if there is a surgery that can “treat” the condition, why can’t they work out from there what is actually causing it?

Neither of my parents (or anyone in my entire family history) has had encopresis, but I’m the only one that I’m aware of that has had it. No one else. A family history of constipation or a “spasdic colon” (where the muscles in the sphincter aren’t pushing the stool along as it regularly should is at a much slower rate) can contribute to encopresis, so why am I different?

There a small number of us that have currently (or had encopresis) compared to the majority of the population that live normal lives without soiling. I’m not sure what statistically the ratio is, but I’m sure you’re aware that there is a noticeable difference. Perhaps more research needs to be done to study children with a normal functioning bowel system and children with enco of the same age, and literally play “spot the difference”. What is it in them that works, that in us doesn’t?

If you have any thoughts you wish to share on this topic then feel free to comment them here. I hope I haven’t sounded going round in circles with this thought.

Tell me…..what do you think?

My adventure on Christmas Island

I appologise that I haven’t written on here in a bit, I’ve been away on holidays. I went to Christmas Island (a small island on the west coast of Western Australia). It’s just over 300 miles away making it closer to Indonesia than Australia (even though it’s a part of Aus). It feels weird to put on the Immigration card (yes had to travel International) that I’m leaving Australia to have a holiday in Australia. Strange I know.

Christmas Island is very beautiful, very rocky and full of dense jungle/forest and lots & lots of crabs. Red Crabs (due very soon to do their annual migration to the sea for mating, spawning and many die), Blue Crabs and the Robber Crabs (sometimes known as Coconut Crabs). Christmas Island is also a common entrance for the Asylum Seekers from places like Shri Lanka, Indonesia and Pakistan. The last time I was at Christmas Island I was approx. 5 years old. This time I stayed at the Christmas Island Resort (and they were expensive too), but unfortunately it’s very run down and many of the rooms wouldn’t be suitable (also isn’t safe/hygenic) for tourists in its current state. The restraurant is great though. I did manage to find a more suitable accomodation on the last night I was there (stayed a week it total).

I re-explored the island visiting places including The Grotto, Lilly Beach, The Blowholes, snorkeling and exploring a cave. Definitely an adventure to get into and through the cave. I also visited the town (bigger than what it was before), went to the outdoor movies (all open air, different to the Sun Pictures in Broome), and went to the overlook of the detention centre (very big).

Did have some drama while there on the island, which did put a damper on my experience this time. Something I did notice on my holiday (and relevant to enco if anyone is reading), normally at home I take a probiotic everyday…on holidays I didn’t. At home I’m able to poop regularly (which is great for an enco-survivor), and away it was once every 3 days (too much detail…maybe, but this is a blog about encopresis and an inspiration for other survivors/battlers out there). In my opinion probiotics are definitely helpful to get the body on track and help with the pooping process. 🙂

Am back home now, inspired to work on some things…and off to circus training. Keep safe my readers, and have a great weekend.