ASK ME

This page is where you can ask all your questions, both Encopresis related and not. I’ll do my best to answer them. The most common questions will get answered. What can I help you with?

17 thoughts on “ASK ME

  1. Katarina 20/06/2017 / 6:37 am

    Hello!
    I am a 18 years old girl and I have encopresis. I have had it since I was 6, or that is what I can remember. I can even have had I longer. I just want to say that I nearly cried when I come across your website. I have felt so alone for so long. I sometimes feel like I am the only one in the world that is over 10 and have encopresis. But it is one thing I would like to ask. Do you have any suggestions about what I can do to be free from encopresis? I have been at the hospital, to therapy, physical therapy, talking to the nurse at school and to my doctor (he just send me up to the hospital). I have tried to talk to my parents, but they don’t understand. I barely understand it myself. I am just so tierd of it all. It really affects my everyday life.

    • naturegirl015 26/06/2017 / 3:04 am

      Hi Katarina,

      How are you? Thank you for sharing your story with me. I understand how isolating having Encopresis is, and feeling alone with no one to talk to that really knows what it’s like. You are never alone. Some things I suggest are to increase your water intake (or tea) , fibre (balance), taking a daily probiotic, some form of physical exercise (it helps to keep the bowels moving) and never stop living life and following your dreams. You are more than welcome to e-mail me: naturegirl015admin@themagicwithinus.com or join the Facebook group (Encopresis Support Worldwide): https://www.facebook.com/groups/211406189068339/?ref=bookmarks

      Stay strong and happy. Never lose hope and never let Encopresis control your life. There is light at the end of the tunnel. Take care,

      Dimity

      • Katarina 01/07/2017 / 4:09 am

        Thank you so much! I will ceep it in mind. I really do appreciate it.

        • naturegirl015 01/07/2017 / 4:24 pm

          You’re very welcome Katarina. I hope this helps you, and feel free to keep in touch. 🙂

          Dimity

  2. Heather 22/02/2017 / 2:39 am

    Hi Dimity:

    I am the mother of a 16 year old girl with encopresis. She has struggled with this since she was a small child and continues to do so. For many years I didn’t even know this was a medical condition and attributed it to her “being lazy” and not wanting to go to the bathroom. She could not give me any explanation for why the accidents kept happening. Once I realized what encopresis was, I read everything I could get my hands on and tried everything I could to help her. Initially she refused to allow me to discuss this with her pediatrician because she was embarrased. I finally got her to allow me to and she was referred to a pediatric gastroenterologist. Their plan of action was to do a clean out with Miralax and then continue to take a daily dose. We did the initial clean out but then she would stop taking the Miralax (she would refuse) and then the whole cycle would start over again. I also tried having her use daily enemas for a little bit but then she would stop them because she didn’t like doing them (I don’t blame her). With her being 16 and strong willed, it is very difficult for me to get her to agree to a maintenance program after a clean out to keep her from developing the problem all over again. She does not want to have foods restricted or do anything that is unpleasant. Is there anything that you could recommend that could help her? What helped you?

    I am desperate to help her and I feel pretty hopeless. She will be leaving for college in a year and I can’t imagine how difficult it will be for her having this problem.

    I would welcome any guidance you can provide.

    Thank you very much.

    • naturegirl015 04/03/2017 / 10:26 pm

      Hi Heather,

      How are you? Thank you for taking the time to read my blog and share your story. Having a suppository/enema can be traumatic for some, especially on repeated attempts (they were traumatic for me, even though I understood medically why I was given them. There are 2 entries for you to check out: http://themagicwithinus.com/2012/07/09/is-it-true-your-child-cant-really-smell-or-feel-that-heshe-had-an-accident/ and http://themagicwithinus.com/2013/05/26/how-i-overcame-encopresis/ . Everyone experiences a different journey, and what may work for me may/may not work in your situation. Where in the world are you from?

      There is light at the end of the tunnel. It will get better. Continue to live life, stay authentic, dream big and always dream bigger! Never give up on your dreams and passions. Encopresis is a hard journey to go through, however living life and not letting Enco get in your way is always a recommendation. Always love and support your daughter. Tell her she isn’t alone (and always welcome to talk to me if she wants to, being an Encopresis survivor myself and understands what she’s going through).

      Feel free to e-mail me (the more I learn of your story, the more help I can give): naturegirl015admin@themagicwithinus.com

      Stay strong and please keep in touch,

      Dimity

  3. mdoug 01/09/2016 / 10:44 pm

    Thank you for sharing your story. I am a parent of a child with encopresis and like others have tried doctors, laxatives, enemas, etc., you mentioned probiotics. Did you DO something- a specific regimen- to get better or did you get better spontaneously, meaning without specifically addressing it? What is your current “maintenance” routine?

    Thank you!

  4. Danielle 12/07/2016 / 11:32 pm

    I have a 15 year old daughter. We have struggled with this since she was 3. It started as her telling us that “Princesses don’t poop”. She would hold her bowels until her tummy as so distended. I can always tell when she is “backed up” because her tummy still pops out. We have been to many Drs. and specialists. We were never given an diagnoses. I am happy to have come across this blog. We can smell it on her occasionally. She has a lot of friends, and as far as I know she has never been teased about it. We have tried everything, pressing to poop, dietary adjustments, probiotics, miralax, etc. For the past year or so we have sort of “just ignored it”. It has not gotten any better that I can tell. Although I don;t see her tummy as distended anymore. Its great to hear that your body “sorted its self out”. At what age did that happen? Are we possibly close to that? Should we keep ingoring it or take her back to another Dr? Something has got to give, she is almost 16!

    • naturegirl015 07/08/2016 / 5:43 pm

      Hi Danielle,

      How are you? Thank you for sharing your story. Your daughter is very lucky to have loving parents, and friends whom she can trust. As mentioned in a previous post, the family house had some renovations done (when I was 15 years old), including installing an ensuite (personal bathroom) and TV in my bedroom. This with a combination of drinking more water (and tea), Paraffin Oil (stool softener), fruit (less apples and bananas) and following my passions (dancing, writing and performing) all helped me. Don’t lose hope, stay strong. There is light at the end of the tunnel. You are not alone.

      Feel free to e-mail me: naturegirl015admin@themagicwithinus.com if you want to talk more about it, or any other questions that you might have. Your daughter is always welcome to e-mail me, personally, or add me on Facebook. Take care and keep in touch,

      Dimity

  5. Karen Thomas 11/08/2015 / 7:59 pm

    Hi

    My son is 14 years old and it makes me sad that I have only been made aware of this condition today. I have been at my wits end with my son who, although admits there is a problem, doesn’t know what to do about it.
    He has a pretty poor diet but is extremely slim so doesn’t see why he needs to eat fibre and vegetables. When he uses the toilet he pretty much blocks it on a regular basis and his underwear is always soiled with more than just ‘skidmarks’.
    I have been at my wits end thinking that he is just being lazy and, as I can smell it on him, have been worried sick that his friends will notice it on him and will tease him.
    It’s been a Godsend finding this blog and reading the different stories.
    I know now that, chances are, he has this condition and I aim to help him to sort it out.
    In fact, I feel quite ashamed that I haven’t helped him sooner but it’s been difficult broaching the subject as a single mum to a growing boy.

    I’ll keep you informed…..

    Mama Kaz

    • naturegirl015 12/09/2015 / 5:47 pm

      Hi Karen,

      How are you? Thank you for sharing your son’s story with me. It breaks my heart when I hear stories of Encopresis causing so much negative emotions in a family, and upsetting the family dynamics. From my personal experience with this condition, I too didn’t know to stop soiling or why it happened (It was hard for me to know if I did it in the first place). I also on several occasions would block the toilet (and not just at home as well).

      You are not alone in this condition. I’m here to help as best I can, and more into the future. Don’t forget to subscribe to the blog, and do please keep me updated on your family’s progress and journey. Your son is also welcome to contact me personally (here, e-mail or Facebook) and connect with another Encopresis survivor. I’m sorry to hear your story, and am very grateful that my blog is helping your family. Feel free to e-mail me: naturegirl015admin@themagicwithinus.com

      Thank you for taking the time to read my blog and share your story. You are NOT alone anymore. Please keep in touch and take care,

      Dimity

  6. zannaht 15/05/2015 / 12:00 am

    Hi. I’m taking my 11 yr old son to the paediatrician (UK) tomorrow. He has been on movicol and sennacot for a few months now and has more “accidents” than before we went to the GP! Is there anything I should be asking the paediatrician for? EXlax? counselling? etc. Thanks, Susannah

    • naturegirl015 20/05/2015 / 3:04 pm

      Hi Susannah,

      How are you? Thank you for commenting. Good luck with meeting the GP/paediatrician, and keep me posted on what’s happening. Some parents that I communicate with have found their child having a Gluten and Dairy sensitivity, so perhaps ask about getting that checked out. Ask about taking a daily probiotic, fibre and Parrafin Oil (stool softener). Can you please e-mail me: naturegirl015admin@themagicwithinus.com about what happens, which specialists you have taken your son to and their contacts? I’m very interested in finding out more about them. I hope this helps.

      Take care,

      Dimity

  7. Sandra Nosik 11/02/2015 / 12:57 pm

    My daughter is 10. We were told that she had overactive bladder until she developed encopresis with it last summer. Since then we have been to a physical therapist and GI doctor. There has been some improvements, and understanding why she is having troubles has helped a lot. However, we still struggle with timeliness in dealing with accidents. Her teachers at school are getting frustrated because she will not always go and clean herself immediately or well enough when it is pointed out. I fully believe my daughter does not feel it, but when I try to impose a set schedule for sitting on the pot at home and school, she resists and insists that she can take care of herself. The frequent accidents belie that, but how can I help her see the importance of a schedule to help her avoid accidents? Also, how can I show her the importance of going and taking care of herself right away? She has been known to deny that she has had an accident even though it is very clear she has and will not go clean herself up both at home and elsewhere.

    • Rika Erasmus 17/06/2015 / 2:21 am

      Good day, I’m a teacher of a child with encopresis. We managed to have success towards end of the year. New year starting, after holidays, the old problem is back. When going to the toilet it can last up to 45 min. Please give advice or give any feedback – going to Junior high next year and I am so concerned about what is going to happen.

      • naturegirl015 14/08/2015 / 3:29 pm

        Hi Rika,

        How are you? Thank you for posting on my blog. I am very interested in getting into contact with a teacher/school nurse about this issue. Can you please e-mail me: naturegirl015admin@themagicwithinus.com and we can discuss more about this. Thank you.

        Dimity

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