Encopresis survivor communication

Hi to all my readers out there,

How are you all doing? How is your weekend? Thank you for the e-mails, comments and posts and sharing your family story and experiences. I really appreciate it, respond and am here for you. As an Encopresis survivor myself, I know what it feels like to feel so alone with no one to talk to whom has gone thought it and open to talk to. Someone existing and real, someone that soils underwear with no idea why, someone that I can relate to. I’m here for you all.

I am available, open and interested in talking to your child/teenager/adult. Whether it’s on the phone, e-mail, writing a letter and creating a video message on YouTube. It doesn’t matter whether your child is 4, or in his/her 60’s. If receiving a personal letter from Santa Claus at Christmas time brightens up your child’s life, I know what it would be like to receive letters though out the year from a fellow Encopresis survivor.

I will give my postal address/phone number for the families that request it. The best ways to contact me are posting on my blog directly,

e-mail: naturegirl015admin@themagicwithinus.com

Facebook: https://www.facebook.com/helpencopresissurvivorseeellen

Twitter: @naturegirl015

YouTube: https://www.youtube.com/user/naturegirl015

Enjoy the weekend everyone. Stay strong, be yourself and never give up.

Dimity

How I overcame Encopresis

Of all the questions I’m asked as an Encopresis survivor, the most popular one is: “How did you overcome Encopresis?”

When I was 15, the family home got renovated by expanding the current bedrooms and installed an ensuite with my bedroom. Although it didn’t stop my Encopresis at the time, I do remember noticing a significantly smaller amount of soiling after the renovation completion. It took a while, and it took longer before I actually noticed myself the soiling had stopped (6 months to year after soiling). No one else noticed or commented it gone, or anything like that. Life went on reguardless.

I can’t pinpoint if it was the combination of Paraffin Oil use at night, drinking more tea (English Breakfast) or minimalising stress. It was a long time ago. As my stools became softer (less huge at least) and more frequent in passing, my body slowly got into a new rhythm. Although for several years going to the toilet once a week became the “norm”, admittedly it was a lot better than not going in 10 days.  Sadly my tummy won’t ever be flat because of Enco and the magacolon I have, no matter how hard I train at the gym, I’m ok with it.

For many families this condition is more complex in how to deal with it, and what are possible triggers of it. What are your experiences with this? If you have any questions or comments feel free to post them below or you can e-mail me: naturegirl015admin@themagicwithinus.com

Have a wonderful week ahead everyone 🙂

Why do some people have Encopresis and others do not?

Hello to all my readers out there. Did you have a wonderful start to the New Year ahead? I thought I would start my blog off this year with a recurring thought I had about my encopresis journey.

Here is my question to you: If we’re built the same (2 arms, 2 legs, 1 torso, etc..I’m talking generally), how come some people have encopresis and others do not?

What I have been wondering (and still do) is there are people like me that has suffered from Encopresis with the soiling underwear, constipation, enlarged colon, etc; and the other majority of people that have similiar experiences (constipation, the occasional use of a laxative to name a few) do not soil or have enco. Does that make sense in how I worded it?

I understand doctors advising to clear out the system and try and make the faecal matter soft enough to be able to be excreted without pain (and other recommendations), however as an encopresis survivor I feel (and this is my personal opinion) that we are treating the systems of enco, not the cause. When you have encopresis the stool is generally hard, so how come no matter how much water we drink we still have hard and painful stools? Other people can drink water and have normal soft stools, and yet when you suffer from enco this doesn’t work. Are doctors and specialists researching this particular scenario? (if they are I haven’t found any reseaech yet).

I have found a doctor in Australia that specialises in the “button” sugery for children with enco (to be honest I’m not sure myself how it works, and am grateful that I didn’t go through that surgery), and has had success with his patients. I wonder that if there is a surgery that can “treat” the condition, why can’t they work out from there what is actually causing it?

Neither of my parents (or anyone in my entire family history) has had encopresis, but I’m the only one that I’m aware of that has had it. No one else. A family history of constipation or a “spasdic colon” (where the muscles in the sphincter aren’t pushing the stool along as it regularly should is at a much slower rate) can contribute to encopresis, so why am I different?

There a small number of us that have currently (or had encopresis) compared to the majority of the population that live normal lives without soiling. I’m not sure what statistically the ratio is, but I’m sure you’re aware that there is a noticeable difference. Perhaps more research needs to be done to study children with a normal functioning bowel system and children with enco of the same age, and literally play “spot the difference”. What is it in them that works, that in us doesn’t?

If you have any thoughts you wish to share on this topic then feel free to comment them here. I hope I haven’t sounded going round in circles with this thought.

Tell me…..what do you think?