Guest Blogger: A personal request to share his story (via e-mail)

Hey everyone,

Recently I received an e-mail from a 40 year old man, from California (United States of America) whom has personally requested that I share his story, and has given me permission to do so. It has been written in 2 Parts.

WARNING: This is TMI (Too Much Information) personally shared story. If uncomfortable, please look elsewhere.

*NOTE: BM is Bowel Movements.

This is his story, shared in his words.

Part 1: 

I’m single white male, late 40s,California

Began having constipation issues age 14,diagnosed with mega-colon,encopresis,and anal fissures.i would go potty every 3 to 6 days,causing extremely large BMs.
Doctor told my mom to give me a FLEET enema once a week to help.me go potty easier.
So I got embarrassing weekly enemas from my mom age 14 to 22,but the enemas did help a lot.tried diet changes and exercise ,but only enemas helped.
At 22 I moved out but struggled with constipation still ,at age 28,I moved back in with mom after dad died.
I had to start getting enema again from Mom just to get to work.
Mom decided to try FLEET mineral oil enemas at age 28,mineral oil enemas helped me pass the hardened compacted bms I had, better then fleet saline enemas I got in my teens.
I’m embarrassed to admit I STILL get weekly enemas from Mom or my aunt
End part 1.
Part 2:
Part 2 of my story is when I moved back in with mom in my late 30s,I had mega colon diagnosis,and had to get weekly fleet mineral oil enemas
End part 2.
Thank you for being brave, opening up and trusting me by sharing your story. There is light at the end of the tunnel.
You are not alone.
Thank you for reading. If anyone YOU wish to share your story, send an e-mail to: naturegirl015admin@themagicwithinus.com
All my love,
Dimity
www.themagicwithinus.com

Beauty Personified

Hey everyone,

How are you all? I hope that you are all doing very well and enjoying the new week ahead.

I received a beautiful poem written from a fellow Incontinence (Encopresis) survivor that I have been corresponding with for several years. Let me know what you think about it. Here it is:

BEAUTY PERSONIFIED

Looking around in wide and breadth

I went in search for a place where beauty had no dearth;

Found myself on a museum called ‘earth’

Below whose bower laid beauty well covered

 

I noticed the beautiful ocean, ‘so blue’!

But the beauty of blue was not so true!

The sky never did give us a clue….

But without the brocade over it, never the ocean had the ‘true blue ’

 

Came after the cozy night, appeared there the golden moon!!

Shining bright, but I don’t fall for it that soon

Wondering at the moon I discovered, she is filled with scars,

She was just trying to brazen staying that far

 

My search took me around the globe

Tired I was full of grief, singing in my lament;

I closed my eyes, after which mother earth opened her latch,

My questions all answered, I found a beauty for which had not match

 

I was scandalized but finally had a reason to smile

I felt like I just came out of exile!

This search left me satisfied

Oh! Mother Nature you are a beauty personified!

Encopresis survivor communication

Hi to all my readers out there,

How are you all doing? How is your weekend? Thank you for the e-mails, comments and posts and sharing your family story and experiences. I really appreciate it, respond and am here for you. As an Encopresis survivor myself, I know what it feels like to feel so alone with no one to talk to whom has gone thought it and open to talk to. Someone existing and real, someone that soils underwear with no idea why, someone that I can relate to. I’m here for you all.

I am available, open and interested in talking to your child/teenager/adult. Whether it’s on the phone, e-mail, writing a letter and creating a video message on YouTube. It doesn’t matter whether your child is 4, or in his/her 60’s. If receiving a personal letter from Santa Claus at Christmas time brightens up your child’s life, I know what it would be like to receive letters though out the year from a fellow Encopresis survivor.

I will give my postal address/phone number for the families that request it. The best ways to contact me are posting on my blog directly,

e-mail: naturegirl015admin@themagicwithinus.com

Facebook: https://www.facebook.com/helpencopresissurvivorseeellen

Twitter: @naturegirl015

YouTube: https://www.youtube.com/user/naturegirl015

Enjoy the weekend everyone. Stay strong, be yourself and never give up.

Dimity

An Encopresis Survivor’s guide to Social self confidence (Part 1)

Whenever it was recess/lunch time at school I spent the majority of time by myself, or I would talk to the teachers when they were doing their walk around on duty. “Why don’t you go hang out with your friends?” they would ask. “What friends?” was my constant reply. I could hang out with the bullies…plenty of them around. When the kids at school went to a party, school dance or ball..guess who wasn’t invited? Being treated as a loner for no other reason than “just because”, isn’t going to do anything good.

Having Encopresis with the uncontrollable soiling of underwear (and NO urge) is hard enough, having any chance of a social life is a long distant dream. When I see the “popular kids” or anyone with the huge self confidence or a social butterfly, I admit I’m envious. I cried a lot because of the bullying, being stabbed, work stolen and things thrown at me. Neither of these are related to having Encopresis, only I wasn’t self confident enough to not let it upset me.

The teenage years are where the affects of peer pressure and peer influence take hold. I was able to invite a few friends to my birthday, but rarely was I invited in return. Sometimes in the movies/TV shows there are scenes where the teenagers are hanging out with their friends (both guys and girls), dates and all the other fun stuff. When you have Encopresis (including myself), it isn’t a cliche but real. It can be so painful to watch other teenagers be happy and do “normal” things, but can only view it from the outside and no idea what it’s like to actually experience it for his/herself.

Once I left school after Graduation and no longer in contact of people from school life (especially the bullies), I am more able to gain my self confidence, and with it a sense of social confidence. Performing and books (writing, reading and the library) are always a part of me. I am my most happiest doing what I love, and no longer allow bullies to take control. I won’t be somewhere if the bullies are there. I always stayed true to myself, my family and my interests.

Being on stage, on set or writing and hanging out with like minded people means a lot to me. The more I know about myself and push my comfort zone, the more I can stand up for myself. I can walk down the street with a  spring in my step and talk to people. To tell someone I know that I had Enco isn’t easy, but it really is freeing. Here is a quote from a recent e-mail that a fellow Encopresis survivor sent me:

“I told my few friends in class that I had a disorder called Encopresis and for the first time in my life I no more feel shallow for myself and that they took it lightly now I feel much better around them.
Initially I repented telling them but I found that its better to let them know than hiding inside and killing my social life, I even discovered that its considerably a better experience than being sympathised. I am really doing good at this now and I am always thankful for your dedicated efforts towards enco veterans. I may be healing in a real slow pace but I found it as a healthy development and I am sure that my leap of faith did not go in vain”.

Understandably not everyone is ready to open up to someone they trust about this condition (myself included at the time). Opening up about this to someone you trust (close friend, teacher, family) is hard initially but is something I suggest you do. If suffer from Encopresis while at school for example, a trusting friend that knows what is happening and on your team, can hint that you need to change and be there for moral support. The first step is always the hardest.

Keep posted to my blog for Part 2 of this post. Don’t forget to subscribe, write/e-mail to The Ellen DeGeneres Show and give the Facebook page a LIKE ( https://www.facebook.com/helpencopresissurvivorseeellen?ref=hl ), and let me know how you go.

Do you have any suggestions? Have you shared your story with anyone else and was it helpful in gaining confidence in yourself and social confidence? Take care,

Dimity

Help Encopresis survivor, Dimity, to get onto The Ellen DeGeneres Show

Hello to all my readers out there. Happy Valentine’s Day (or “Singles Day” for those that are single). For those of you that are aware of this, one of my biggest dreams as an Encopresis survivor is to share my story and help those of you with it. When I was suffering in silence with Encopresis, I always wanted to find another person whom has it. Throughout all my years of it, I never saw a single person (apart from the guy whom is like a brother to me) or celebrity open up about it. No role model to look up to, no one that I could relate with. I don’t want anyone else with Encopresis to suffer in silence. I am here for you all.

The Ellen DeGeneres Show inspires so many people (including myself) to do great things and help others. Some of her guests on the show have inspired me and hearing their stories brings a smile to my heart (especially when Ellen works her magic). Thank you everyone for sharing your stories, both on there and e-mailing privately..it means so much to me. Here is a previous article about inspirational stories: http://themagicwithinus.com/2013/09/18/i-love-inspirational-stories-and-how-they-change-peoples-lives/

I have recently created a Facebook page called “Help Encopresis survivor, Dimity, to get onto The Ellen DeGeneres Show”. Please help me to help you. With your support of LIKE-ing the Facebook page, and sharing it around, the more word together we can spread about Encopresis. The Ellen DeGeneres Show touches the lives of millions of people around the world, it only takes one person to make a difference. “Be the person you wish to see”. Please. Help me. Imagine how many Encopresis suffers are watching the show, wishing someone on there that they can actually see and communicate with, and is able to actually watch the show and know someone that is. I’m an Encopresis survivor. I know how embarrassing it is to have this condition, and feel the sting of being bullied and treated as a loner. I also know how amazing it feels to be able to connect with another Encopresis survivor. YOU are not alone anymore!! Ellen DeGeneres inspires millions, touching their hearts. With your support, we can inspire many more.

The link to the Facebook page is here: https://www.facebook.com/helpencopresissurvivorseeellen

You can always e-mail me: naturegirl015admin@themagicwithinus.com

Or if you really want to, you can use the online application form for The Ellen DeGeneres Show directly (please include my blog link and Facebook page): http://www.ellentv.com/be-on-the-show/399/

For those that want to write a physical Fan Mail letter to the show, and this campaign, the address is here:

 

The Ellen DeGeneres Show
PO Box 7788
Burbank, CA 91522
ATTN: Fan Mail

United States of America

Have the most amazing weekend everyone. Thank you for reading. Please help spread the word and share it. Feel free to comment and say hi or share your story. Take care and thank you everyone.

Dimity

P.S. Always “Be Kind to one another” (~ Ellen DeGeneres)

Encopresis in Adults (even you aren’t alone in this)

I have recently received several e-mails from other Encopresis battlers whom are in their 20’s. Their identities are withheld, and I honour and respect their wishes. My heart goes out to each and every one of them and their families. Some are embarrassed to talk about it to others, understandably, and feel so alone.

A recent e-mail from a 20-something Encopresis-battler asked me about Encopresis and if it affects fertility or not. Whomever sent this (and you know who you are), you can be rest assured that as far as I know (and researched) Encopresis doesn’t negatively impact fertility because I know of someone who is also a 20-something Encopresis-battler and his girlfriend (that doesn’t have Encopresis) is pregnant!! I have also received e-mails/Facebook chats from parents whom have children with Encopresis but suffered similar incontinence problems as a youngster too. If I do find evidence of Encopresis affecting fertility (or Cancer) I will definitely let you know, my fellow readers.

The suggestions I have for parents whom have children with Encopresis are also useful things to consider if you are an adult with Encopresis. Drinking plenty of water (or Tea), daily probiotic, exercise regularly, check for any hidden dietary allergies (such as Gluten or dairy), have fibre in the diet, remain positive, don’t yell/punish (if you are the parent), have open and loving communication and never let Encopresis determine you or your life. Encopresis doesn’t last forever. Yes it may seem like it, and I too have often felt it to be a curse. Now I’m turning it into a blessing and helping you guys and everyone else I can about this condition (and the professionals too, if you wish to collaborate).

“Encopresis in adults” has been a common online search name, and with the recent e-mails I have received lately I thought it was something worth writing about today.

If you have any comments/feedback or suggestions, you are welcome to post your thoughts below, share my blog around or e-mail me: naturegirl015admin@themagicwithinus.com

Stay strong. YOU are NEVER alone with Encopresis. I am here for you all (and my love).

“With an open mind, and an open heart…anything is possible!” – Dimity. T

Is being suddenly cold a sign of the body “needing to go”?

Whilst reading a book about encopresis recommended by parents (“It’s no Accident” by Steve J. Hodges, M.D), it mentions the signs of children when they are withholding stools. However I haven’t come across anyone yet that has mentioned their child (nor encopresis survivors) that have had a sudden feeling of being cold when was actually a bodily sign of “to go”. It sounds confusing doesn’t it? Let me explain.

If you have been reading my blog so far then you will be familiar with me having Encopresis (faecal soiling) as a child/teenager. There have been several occasions where I’d be at home happily playing a game with my toys when I would unexpectedly feel cold. I would get goosebumps on my arms, my outie bellybutton would be hard (not soft like normal..is an innie now) and the body would tense up. It was a momentarily feeling, last for a few minutes at most, and a few seconds at least. Then move on and continue playing. I am wondering if that was one of the very few signals I ever received of my body needing to have a bowel movement. Understandably there are other more common symptoms that children show when they are withholding (I don’t know if I was withholding or not, as my colon was so enlarged I rarely felt it, but that’s another entry). If I did withhold it was never intentional nor did anyone connect it with Encopresis. I would like to add that this cold feeling isn’t connected to actually being cold or in a cold environment. My cold feeling are usually in my bedroom with just the fan on (I live in a hot tropical environment). I’ve never had the urge to go (either pee or poo) when in a cold environment.

It got me thinking.  This is my observation.  Have any of you readers noticed your child mention this? Have you noticed it yourself? Let me know, or you can e-mail me at: naturegirl015admin@themagicwithinus.com