Alex and the dangers of Miralax (PEG 3350), told by the parent.

Hi everyone,

Below is a story about Alex, a 9 1/2 year old boy, and the day he almost lost his life because of Miralax (PEG 3350). This has been shared by a concerned parent (I have been given permission to also share this) to create awareness about this. Here is Alex’s story:

Alex (awarded by Make A Wish Foundation = PEG 3350). Age = 9 1/2 years old

 

Alex awarded by Make-A-Wish Foundation……………
It all started:
2-14-11 Alex barely made it into the ER before going into septic shock and then
cardiac arrest twice. We are thankful to the St. Frances ER for stabilizing Alex
after 18 minutes of CPR. He was then rushed to Mary Bridge Children’s Hospital and
operated on with us being told he may not make it. In order to save Alex’s
life…they removed his entire colon, appendix and several inches of his small
intestines.
Since Alex was 18 months old; he was placed on Miralax…. After being on doses of 17mg twice or more
a day…. It took until he was 9 1/2 until the unthinkable happened above.

Alex missed a ton of school from not feeling well… He stayed home the week before from just not feeling well. I took him to a naturalpathic doctor to have him tested for food allergies and visited the nurse practitioner who ran the special clinic
on constipation that Friday. What did they do…The nurse practitioner sent us home with a prescription of 17 capfuls at 17 mg of MIRALAX for an at home treatment….You read this right…17 entire doses at 17mg of Miralax within a day or two…that weekend !!!
As soon as we got home from school he started vomiting profusely dark brown substance. We found out later from the ER doctor he was vomiting his stool. Later that night…Alex seemed lethargic and
his eyes started rolling back into his head. His stomach felt like it was going
to explode. I rushed him into the nearest ER only for him to hang on until I
wheeled him into the Hospital for Alex to go into cardiac arrest.
We were then told that there was a strong chance that Alex may not survive during the transportation to The Mary Bridge Hospital. During his transport…once again needing to help him breath…Alex made it to the hospital for the everyone to pray that he would survive his surgery. They said Alex had gone septic and his entire Colon was black and had to be removed along with part of his small intestines that showed partial damage as well. They hospital had to place Alex in a coma since his he was so swollen and the doctors were going to have to go back in for more surgery. My baby…

2-17-11 Alex was then operated on 2 days later…also pulling through surgery.
He is my tough cookie! His blood pressure has been extremely low and recently
stabilized on 2-18. The hospital had to do several kidney dialysis to help
stabilize Alex due to renal failure. He has a couple more surgery’s to undergo before we know what the outcome will
be and to determine him mentally.

For years….I had a terrible feeling that something was just not right with my
son on so much Miralax. I have been reading all the side effects and never realized that the
way my son was acting had anything to do with this medication. Alex was depressed and overwhelmed. He would often be in a good mood and then suddenly the meanest little stinker in the world. He would be loving one moment and then
totally distant the next. Alex had tons of gas he just couldn’t release. My sweet little boy became more challenging as the years went by.

We consider Alex our miracle child…He basically died and was brought back
and survived!

If there are any other cases out there similar to ours…Please help us. I want
to make sure that the nurse practitioner does not make this mistake on any
other children out there.

*For more information and talk to other families, join the Facebook group: Parents Against Miralax (PEG 3350). Link here: https://www.facebook.com/groups/209540745755798/?hc_ref=NEWSFEED 

Or you can share your concerns on this form confidentially  here:

https://docs.google.com/forms/d/e/1FAIpQLScoHP2Mn_5PgSLwNDCIG0C3FdhMjKKL_cRPv9HZ5iUcd7ht7w/viewform

If you are interested in the FDA Petition Update: Polyethylene Glycol 3350 Laxatives and Children, click here:

https://docs.google.com/document/d/1oA9dKatIQW7Lo3uLpP_7Oh3bFc5nC-ryNl3BBSB9IgA/edit

Dimity

A list of Encopresis books (those that I currently have)

Hi everyone,

How is your weekend going? Below is a list of Encopresis books that I currently own (book copy), and will review in a future blog post including where they are available to buy. If there are other physical books on the subject available that you know of that aren’t on this list and am interested in a honest review, feel free to mention it in the comments section or e-mail me: naturegirl015admin@themagicwithinus.com

List of Encopresis books:

  • A Girl Like You: A story for older children who soil – British Edition (Author: James Parkin) (Publisher: Amazon Digital Services)
  • Stool Withholding: What To Do When Your Child Won’t Poop! (Author: Sophia J. Ferguson) (Publisher: CreateSpace Independent Publishing Platform)
  • The Ins and Outs of Poop: A Guide to Treating Childhood Constipation (Author: Thomas R. Duhamel, PhD) (Publisher: Maret Publishing)
  • Scared To Poop: A Guide To Overcoming Constipation And Stool Withholding In Children (Author: Kathleen M. Diehl) (Publisher: Gateway to Being)
  • Solving Children’s Soiling Problems: A Handbook For Health Professionals (Author: Jackie Bracey) (Publisher: Churchill Livingstone)
  • Constipation, Withholding and Your Child: A Family Guide to Soiling and Wetting (Author: Anthony Cohn) (Publisher: Jessica Kingsley Publishers)
  • Elimination Disorders in Children and Adolescents: Advances in Psychotherapy, Evidence-Based Practice (Authors: Edward R. Christophersen & Patrick C. Friman) (Publisher: Hogrefe Publishing)
  • Clouds and Clocks: A Story For Children Who Soil, Second Edition (Author: Matthew Galvin, M.D.) (Publisher: Magination Press)
  • It Hurts When I Poop!: A Story for Children Who Are Scared to Use the Potty (Author: Howard J. Bennett, M.D.) (Publisher: Magination Press)
  • Bladder and Bowel Issues for Kinds: A Handy Guide for Kids Ages 4-12 (Author: Janet  A. Hulme M.A., P.T.) (Publisher:Phoenix Publishing; 1 edition (June 2003)
  • I Can’t. I Won’t. No Way!: A Book for Children Who Refuse to Poop (Author: Tracey J. Vessillo) (Publisher: CreateSpace Independent Publishing Platform (October 31, 2011)
  • The Un-Constipated Gourmet: Secrets to a Moveable Feast. 125 Recipes for the Regularity Challenged (Author: Denielle Svetcov) (Publisher: Sourcebooks, Inc.)
  • Poop: A Natural History of The Unmentionable (Author: Nicola Davies) (Publisher: Candlewick Press)
  • Softy the Poop: Helping Families Talk About Poop (Author: Thomas R. DuHamel, PhD) (Publisher: Maret Publishing)

What do you think of the list so far? What are you most interested in reading a review of? What are your favourites? Are there any others that need to be included?

I hope this list helps. Don’t forget to keep an eye out for my book. Enjoy the rest of the weekend and have the most amazing week ahead. Take care,

Dimity

Feed The Little Children

Hi Everyone,

How are you all? I’m going well here, getting busy with different projects. Recently I’ve been volunteering at a local non-for-profit charity called “Feed the Little Children”. It is a volunteer run local charity where we cook nutritious meals and deliver them to the local children whom would go to bed hungry otherwise.

I absolutely love it, and seeing all their smiling faces. The parents that I talk to are also very appreciative and welcoming. I go out and help out with the deliveries of the meals (there are other volunteers that cook the meals). At the moment we’re delivering over 300 meals in a night. At the moment it’s only run on the weekend (Friday and Saturday), but ideally FEED THE LITTLE CHILDREN want to run all year round. A lot of the houses are in badly lit areas and it can get really dark at night. Helping to feed the children and help those in need in my community is a wonderful opportunity, and feels truly humbling and amazing inside. For those that are interested in more information, here is the link to their website: http://feedthelittlechildren.org.au

Tomorrow I’ll be feeding the children. Definitely something I love to do on the weekend. Have a wonderful weekend everyone. Stay strong. Do YOU have anything planned for the weekend?

Always be kind to one another. With an open mind, and an open heart…anything is possible.

Dimity

“Dimity meets a Dinosaur”

When I was in Year 3 (age 7 years old), there was a national competition where students were asked to write/illustrate their own original story. While some chose to have their story printed (on paper, cut for the pages) and do their own illustrations..I chose to both write by hand and illustrate my story. Just like all the other kids around me, I was into the Dinosaur-phase, my favourite being the Tyrannosaurus Rex (no idea why, it just was). I decided to call my story, “Dimity meets a dinosaur” (quite appropriate).

The story was about a girl called Dimity, whom meets a Tyrannosaurus Rex, become friends and do things together including playing Cricket and video-games (Nintendo, I never had one but always did want one). At the end they got married, had babies (how? I will never know but it’s what was in the story) and that was it. I’m not an illustrator so the pictures weren’t special but I tried my hardest, but I paid more attention to making my writing as perfect as I could.

A couple of months went by (honestly I have forgotten how long exactly, but long enough for a competition), and I found out that I came second in my division for the competition. The prizes for the competion (at least what I and the others received that won) are: a gift certificate with the local bookshop, some free children’s books, a certificate (I think) and reading the story out loud onto the local radio station. My consolation prize at the time was that I had the Chicken Pox. I remember clearly being all spotty and itchy, standing in line with the other kids and shaking someone’s hand before receiving a book.

Sadly now I have lost my only copy of the book, although fortunately still have a a copy of the recording from the radio. When I was in Year 1 (5 years old) I received a medal from the Government for reading over 100 books in a short period of time. Books, Book Week, reading/writing, libraries, author meetings, etc are a huge part of my life. I’m always making notes when I hear, imagine or read something interesting and have them compired in a safe spot for my writing adventures. I’m never giving up on my dreams, never have then and I never will now. My journey started early.