Encopresis and beyond (4 Questions asked)

Hey everyone,

How are you all doing? I wish to give a huge warm welcome to all my new subscribers (and Thank You).

I was asked recently via e-mail from a parent, about my experiences with Encopresis with a different angle. Below are the questions, and after that will be my responses to them. I hope it helps you all, for those that need it, and feel free to post your thoughts to them or e-mail me: naturegirl015admin@themagicwithinus.com

1. At what age did your parents decide to let you take responsibility for managing your Encopresis on your own?

As a young child and more importantly as a teenager, I was given a plastic bag with a spare change of underwear (and can use the bag to put the soiled underwear in until home). However one spare change isn’t enough when that gets soiled literally as soon as it’s on (smell always lingered). After being constantly bullied when at the school bathrooms, I wouldn’t go in them during school hours unless absolutely necessary (ask your son/daughter about this), and never felt comfortable in there. My stools are very large (thanks to having Encopresis), that they have been known to block the toilet. Blocking the toilet in a public place is very embarrassing and highly increases low self esteem and very self conscious to the point of avoiding it. As a teenager (13 years old), I was old to put my dirty underwear in a bucket of Napisan (stain remover, in the laundry) to soak, which I would do. However when the underwear had the skid-mark type hard stools (and worse), then was yelled at and made to scrub it. This constantly made me cry my heart out to empty ears and very angry & disappointed with myself (as was everyone else). Admittedly and ashamedly this also led me to throw my underwear in the bin in secret to avoid the pain of going through it all, and survive and be a “normal” person. I was later found out (obviously had less underwear in the laundry), but it didn’t stop Encopresis or the emotional pain. Having the spare underwear handy is good and discreet at the time (not so discreet when people can smell it, except me). I wasn’t ever officially diagnosed nor had any X-rays/scans that are available now. I was also given a daily stool softener, Paraffin Oil (before dinner, and water after). It tasted yummy and makes me happy to think about it (it did from time to time give me Diarrhea or leave a oily residue). Did it make a difference? Honestly and in my personal experience, I definitely say YES! My bedroom was extended at age 15, when we did home renovations, and I was given my personal ensuite (and TV in my room), this also made all the difference…and the year I noticed my Encopresis had stopped.

2. Were you able to stop withholding cold turkey or did you still withhold and have the occasional accidents?

See above about personal ensuite/TV installed. I wouldn’t say that I “stopped withholding cold turkey” because I didn’t know that this was happening. No one, not even my parents, mentioned my clean underwear for a significant period of time. No one noticed, not even me. It was an advert on TV or a story or something I heard that when I thought about it was like, “Oh I stopped soiling…cool”, and then continued living.

3. Did you have an epiphany moment when you decided to change? What was that moment and what triggered it?

As mentioned previously.

4. Do you consider yourself to be completely free of Encopresis or do you, as an adult, still catch yourself withholding and take appropriate actions to avoid getting backed up?

Yes I do consider myself Encopresis-free..I’ve referred to myself as an “Encopresis Survivor”, and proud of it to admit it. If you or someone you know is Encopresis-free, then you’re an Encopresis survivor too. Keep in mind I will never say that I am in remission, of Enco (might explain this in another post). Admittedly I can’t pee/poop “on demand”, and this also means that I have difficulties to go successfully (go and not “get the urge but can’t physically go Now”) on the toilet on long haul flights. Sometimes I will get the pain in my abdomen for a few days (after long travel), but this eventually disappears after appropriate action has been initiated. I do continue to have large stools, although go more regularly (doesn’t have to be daily…it’s normal for me to NOT do a “number 2” daily). I prefer to poop at home/hotel.

Thank you for reading my blog. Please let me know in your comments below if you found it useful, any tips for others and what your thoughts are on this.

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or e-mail me: naturegirl015admin@themagicwithinus.com

Have a wonderful day, keep smiling and stay strong.

Dimity

6 thoughts on “Encopresis and beyond (4 Questions asked)

  1. Jen 25/02/2016 / 6:31 am

    I suffered with this condition for most of my life and never knew it affected so many the way it did myself till today. I can’t remember ever not having this as a child and it followed me into adulthood, even affecting me through two pregnancies. It caused even some difficulties for one my deliveries. I always knew something was wrong with me but never knew what, or why I was different. I went through the same things many have spoken of here as far as the discipline and ridicule for not being able to keep myself clean. As I grew older I found ways to hide what I was going through from everyone. I wish I knew what it was that made it stop (it’s been about 10 years) but I honestly cannot pinpoint it. It was as if one day a switch was flipped. I would definitely say I am a survivor and the thought of withholding ever again is terrifying as I couldn’t handle going through any of that again. I have had to help two of my children through this condition as well. Luckily by the age of 6 my sons habits became regular and my daughter took longer, by age 12. There is some comfort in knowing that there are others who actually have gone through what I did as this condition definitely causes one to doubt themselves as a respectable persons and makes you feel completely alone.

    • naturegirl015 25/02/2016 / 9:56 pm

      Hey Jen,

      How are you? Thank you so much for opening up and sharing your story with me. It takes a lot of bravery to talk about your experiences on the journey, and I’m very happy to hear that you are an Encopresis survivor too (and a member of my Enco family). You are not alone anymore, I am here. Where in the world are you from? You are welcome to e-mail me privately if you are comfortable to do so. My e-mail address is: naturegirl015admin@themagicwithinus.com

      Thank you once again, Jen. Stay safe. Stay strong. Keep in touch and take care.

      Dimity

  2. Kathy Krueger 26/10/2014 / 2:17 am

    I started using a very high quality probiotic and it has made a huge difference. I love that it is not an artificial means or toxic substance that he is taking – believe me we have tried everything. My son is having a bowel movement every day (he sits after dinner). Encopresis free – probably not because if he does not have the opportunity to sit on “his” toilet, he would probably not go. But definitely on our way!!! It has been about 4 months – minimal soiling (only once or twice since we started the probiotic).

    • naturegirl015 26/10/2014 / 2:21 am

      Thank you Kathy for sharing your experiences, and congratulations on your (and your son’s) progress on his Encopresis journey. Small changes can make a big difference.

  3. Harry M VanHoudnos 26/10/2014 / 1:13 am

    A very well written piece my friend. And I hope that it will help to bring others out to share their experiences as well.

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