On my quest for research for my book about my experiences (and information), I stumbled upon this site:
It’s written from another encopresis survivor (whom I want to get into contact if I can). She talks about her experiences and how it affects her now many years later. Her and I both understand how hard it is, especially when the parents try and do what the doctor’s recommend, but some things don’t work. Punishing no matter how frustrated you can be is NOT the answer and will do more harm than good (especially emotionally). Those of us going through encopresis do not choose to have it, infact we wish it’d stop too but we don’t know it’s even happening until it’s too late. How are doctors going to know what it’s like and some effective ways of treatment or dealing with this condition unless you truely listen to someone that has personally gone through it? You might not like what you hear (for example, while some children respond positively to suppositories others find it far worse and suffer emotional trauma later on), but at least those of us survivors can truely understand what your child is going through and what she/he wishes you to know. Communication is very important, and has to be both ways. If parents ask the child what it’s like or how he/she wants to be treated (and other questions), perhaps you can come up with a conclusion yourself.
I do agree about how self esteem and confidence has been affected because of the punishments (for a crime not intentionally committed, and uncontrolled). It’s worse when accused of lying about the accidents when to me, the girl in the link, and others say the same thing…for us it is the truth. When that’s the type of response you get for telling the truth, sometimes lying might be the better option (I don’t think that now, but as a child of encopresis be aware of it). I also agree that with the different groups out there for parents to chat and share experiences with encopresis, us as the survivors/patients need our own group too. Maybe I can create one.
Parents might not like what they want to hear on this very touchy and emotional medical condition…but if you truely want what’s best for your child, we have more answers and a willingness to speak up.