I am not as alone as I thought I was

After recently joining a Encopresis group on Facebook (https://www.facebook.com/groups/211406189068339/), I am realieved that I’m not as lone as originally thought.

There are some misconeceptions about what is actually happening. One involves assumption that the child is “lazy” or not want to go toilet, when in reality he/she does not know why. When our body doesn’t give us a strong indication of “needing to go” and our smell receptors can’t actually smell it….as far as we know nothing has happened. To the rest of the world, we have. Parents (and enco kids) can be rest assured that they will grow out of it in time. I did, and that’s why I call myself a Encopresis Survivor (if you can be a cancer survivor why not be a encopresis survivor??).

The poem (and a previous entry) titled “I am just a girl” is an insight into how one feels inside with it.

It’s socially taboo to talk about it (not to mention smelling of it), and yet there are children suffering alone and in silence because of it. I may not know all the answers, but I will share what I do. I’m here for you. E-mail me anytime at naturegirl015admin@themagicwithinus.com

My love to you all!! xx Never give up parents, but please be patient.

4 thoughts on “I am not as alone as I thought I was

  1. Stephanie 10/07/2012 / 7:43 am

    I am the mom of a daughter with encopresis and I started a blog too, at my daughter’s recommendation, to try and bring awarness to parents to let them know they are not alone. We dealt with it for 4 years…LONG years. I discovered her issues are due to a gluten sensitivity and we began giving her a daily probiotic and cut back on her gluten and she is living an almost completely constipation free life. There is hope!!! Thank you for your website…feel free to visit my blog at http://www.momsguidetoencopresis.com May i add your blog to my site in the “Links” section? Please email me at sjoy1972@gmail.com if you’d like!

    • naturegirl015 10/07/2012 / 7:22 pm

      Hi Stephanie,

      Firstly thank you for taking the time to read and comment on my blog. I have also looked at yours. You do, YES, have my permission to put a link about my blog in yours (and you can put my youtube and twitter links too). I have found blogs recently of parents whom have children with enco, but not very many written by an enco suvivor. I was 15 before my condition sorted itself out, but emotionally and my self esteem/confidence is working progress. I have to be a role model/inspiration for yourself, your daughter and other kids out there (and for fellow suvivors to speak up). If it’s ok with you, can I mention you and your blog in my book? You can e-mail me too (telferd2000@yahoo.com.au). You should also read the poem in MAY 2012 section called “I am just a girl”..your daughter will understand it, and you can have a different perspective of it. You can show it to our daughter and tell her she truely isn’t alone…I’m willing to speak up for her. xx I’ll be the face of enco, if that’s what I have to do.

      • Stephanie 10/07/2012 / 8:26 pm

        Yes, please feel free to mention my blog and our family’s story, My daughter is doing so much better, mentally, now that we have gotten things under control and she understands that this is a biological thing and this has been learning experience for us all. Thanks so much for your blog!

        • naturegirl015 10/07/2012 / 8:55 pm

          Hi again Stephanie,

          I’m so happy for you and your family to know you are on the way to living a “normal” life. I too have noticed that once the bullying and enco stopped that emotionally/mentally it becomes easier to handle. After going through enco you can go through anything (you can tell your daughter that). If your daughter has a loving and supporting family (and friends) that understand that this is a medical problem and it’s NOT her fault, believe me, that can make all the difference. I didn’t get that when I went through it, so I was more alone. I have to help these kids/adults and be there for them. If you find anyone else who has enco or children with it, then you can point them my way too. Keep in touch. Be strong. xx Your daughter will be like me, an enco survivor!! 🙂

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